Thursday, October 1, 2009

Noggin Report



On September 18, I took Babybeast in for her 15month well baby visit and pointed out the funny ridge on her head to the pediatrician. I had consulted Dr. Google beforehand, naturally, and had an idea of the possibilities. Babies have skull plates instead of a solid skull - the spaces between the plates allow for the brain and head to grow properly. Sometimes that doesn't happen like it should and one or more areas close too soon.

Xrays were taken immediately and she was diagnosed with Metopic Synostosis, or premature fusing of the Metopic suture, which is roughly the middle top of the head down to the forehead.

Sometimes this condition just causes a ridge with no other effects, which is essentially cosmetic and requires no treatment. Sometimes it is present at birth and causes a deformation of the head called trigoncephaly (triangle head) and is very obvious. If left, it can cause pressure to build up in the fluids around the brain and surgery is typically required.

Babybeast has a much milder version, which, in my nonexpert opinion, has caused her forehead to be narrower than it should and pinching her temples, though none of this is obvious by looking at her, unless you are looking for it. My concern is that her head may become deformed as the brain pushes in other directions, in order to grow. The only treatment for this condition, if it needs treatment, is surgery.

She will be seen by a neurosurgeon and craniofacial specialist later this month - hopefully we will have more information then.

4 comments:

  1. Sending you good thoughts for everything.

    Really truly would love to get together...

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  2. Sending good thoughts that no surgery is required. I'm so sorry you guys are facing this. Hugs.

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  3. Love to you and the baby beast. Love to the big beasts also.

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  4. Thanks all, we now have an appointment with the neurosurgeon on the 27th of this month, so I won't have anything new until then. <3

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